Comments on: First European LDN Conference Report http://glasgowldn2009.com/2009/04/first-european-ldn-conference-report/ The first European Low Dose Naltrexone Conference, Glasgow University, 25th April, 2009 Fri, 10 Sep 2010 16:42:25 +0000 http://wordpress.org/?v=2.6.5 By: Low Dose Naltrexone & Multiple Sclerosis – One Woman’s Story « Pain Management Specialist in San Diego & La Jolla http://glasgowldn2009.com/2009/04/first-european-ldn-conference-report/#comment-5752 Low Dose Naltrexone & Multiple Sclerosis – One Woman’s Story « Pain Management Specialist in San Diego & La Jolla Wed, 10 Mar 2010 06:47:31 +0000 http://glasgowldn2009.com/?p=265#comment-5752 [...] here is a summary of the first European LDN conference in April 2009 at Glasgow [...] [...] here is a summary of the first European LDN conference in April 2009 at Glasgow [...]

]]> By: margaret http://glasgowldn2009.com/2009/04/first-european-ldn-conference-report/#comment-4517 margaret Thu, 15 Oct 2009 20:01:38 +0000 http://glasgowldn2009.com/?p=265#comment-4517 i am on leflunomide just now and indomethacin thks i am on leflunomide just now and indomethacin thks

]]> By: margaret http://glasgowldn2009.com/2009/04/first-european-ldn-conference-report/#comment-4516 margaret Thu, 15 Oct 2009 20:00:50 +0000 http://glasgowldn2009.com/?p=265#comment-4516 hi i have severe psoriatic arthritis and have just been diagnosed with rr ms i was on remacide for 5 years before being diagnosed with ms i am under proffessor mcinness at the royal and overell at the southern i am desperate to try LDN what do you think my chances are i am also covered in plack psoriasis as well as having deformed fingers and toes thanks dr gilhooly hi i have severe psoriatic arthritis and have just been diagnosed with rr ms i was on remacide for 5 years before being diagnosed with ms i am under proffessor mcinness at the royal and overell at the southern i am desperate to try LDN what do you think my chances are i am also covered in plack psoriasis as well as having deformed fingers and toes thanks dr gilhooly

]]> By: tom gilhooly http://glasgowldn2009.com/2009/04/first-european-ldn-conference-report/#comment-4401 tom gilhooly Tue, 29 Sep 2009 07:03:39 +0000 http://glasgowldn2009.com/?p=265#comment-4401 I am glad to hear about your improvement with LDN. I have no experience of using LDN for ADHD however and would suggest that you maximise the use of omega 3 to help with this condition. We are working on a blood test to assess the level of omega 3 which could be estimated on a finger prick sample and would be suitable for children. In the meantime I would give at least 2 g EPA to help. Regards Dr Tom Gilhooly I am glad to hear about your improvement with LDN. I have no experience of using LDN for ADHD however and would suggest that you maximise the use of omega 3 to help with this condition. We are working on a blood test to assess the level of omega 3 which could be estimated on a finger prick sample and would be suitable for children. In the meantime I would give at least 2 g EPA to help.

Regards

Dr Tom Gilhooly

]]> By: kim sahiri http://glasgowldn2009.com/2009/04/first-european-ldn-conference-report/#comment-4387 kim sahiri Sun, 27 Sep 2009 22:51:13 +0000 http://glasgowldn2009.com/?p=265#comment-4387 I found the conference incredibly uplifting and positive, extretemely interesting to hear the stories and advice from such learned Doctors and Pharmacists. I have been on LDN for 6 months now and it has changed the quality of my life 100% ( I have secondary progressive M.S. ) I would say to anyone give it a try, there is nothing to lose, and possibly a huge amount to gain. I need to ask Dr. Tom if there is a possibility that it may also help my son, who has severe ADHD, and needs to take Ritolin in the morning to help him have control/focus amd Melatonin in the evening to help him sleep. Is there any evidence that it may help ADHD/OCD behaviour? Thanks, Kim I found the conference incredibly uplifting and positive, extretemely interesting to hear the stories and advice from such learned Doctors and Pharmacists. I have been on LDN for 6 months now and it has changed the quality of my life 100% ( I have secondary progressive M.S. ) I would say to anyone give it a try, there is nothing to lose, and possibly a huge amount to gain.
I need to ask Dr. Tom if there is a possibility that it may also help my son, who has severe ADHD, and needs to take Ritolin in the morning to help him have control/focus amd Melatonin in the evening to help him sleep. Is there any evidence that it may help ADHD/OCD behaviour?
Thanks,
Kim

]]> By: Barbara http://glasgowldn2009.com/2009/04/first-european-ldn-conference-report/#comment-3177 Barbara Thu, 09 Jul 2009 11:09:54 +0000 http://glasgowldn2009.com/?p=265#comment-3177 I have a 14 year old son with Crohn's for two years. Tried Pentasa, Entocort, Metothrexate with poor results and bad side effects. His MDs want him on biologics. I fear biologics greatly and have tried to convince a few docs to let us try LDN. So far, all of them refused, usually with "absolutely no" as the only and final argument. They refuse to hear about the studies done and lack of side-effects to speak of. Why is that? BTW, we live in US. I have a 14 year old son with Crohn’s for two years. Tried Pentasa, Entocort, Metothrexate with poor results and bad side effects. His MDs want him on biologics. I fear biologics greatly and have tried to convince a few docs to let us try LDN. So far, all of them refused, usually with “absolutely no” as the only and final argument. They refuse to hear about the studies done and lack of side-effects to speak of. Why is that? BTW, we live in US.

]]> By: Dabs http://glasgowldn2009.com/2009/04/first-european-ldn-conference-report/#comment-2340 Dabs Tue, 09 Jun 2009 08:14:09 +0000 http://glasgowldn2009.com/?p=265#comment-2340 What is the progress with the application for funding for the LDN MS study and when can we expect to know more about the trial and recruitment? Thanks What is the progress with the application for funding for the LDN MS study and when can we expect to know more about the trial and recruitment? Thanks

]]> By: Terry McDevitt http://glasgowldn2009.com/2009/04/first-european-ldn-conference-report/#comment-1804 Terry McDevitt Mon, 18 May 2009 04:50:28 +0000 http://glasgowldn2009.com/?p=265#comment-1804 The good doctors will stress that LDN is not a cure but it does improve the quality of life for many people and, with MS, it is mainly thought to help halt the progress of the disease. Any symptom relief is an added bonus. However, many people <strong><em>have</em></strong> experienced symptom relief. My wife (to use her own words) 'wasted' two years before trying LDN. The old saying came to our minds that if something appears too good to be true, then it usually is. Well, my wife firmly believes that LDN has greatly assisted her. We know people who stopped taking LDN because, with one gentleman for example, it didn't noticeably improve his mobility . Significantly, he didn't feel any worse either but he did not attribute the symptom stability to LDN. We have lost touch with him so I cannot comment on his current condition. I am an engineer, not a doctor, so the only advice I would presume to offer anyone is to seek the advice of the experts who attended the conference. These people know what LDN can do and they know the correct advice to give on it's use. Sorry, I have one more piece of advice to offer - don't waste two years thinking about it. The good doctors will stress that LDN is not a cure but it does improve the quality of life for many people and, with MS, it is mainly thought to help halt the progress of the disease. Any symptom relief is an added bonus. However, many people have experienced symptom relief.

My wife (to use her own words) ‘wasted’ two years before trying LDN. The old saying came to our minds that if something appears too good to be true, then it usually is. Well, my wife firmly believes that LDN has greatly assisted her. We know people who stopped taking LDN because, with one gentleman for example, it didn’t noticeably improve his mobility . Significantly, he didn’t feel any worse either but he did not attribute the symptom stability to LDN. We have lost touch with him so I cannot comment on his current condition.

I am an engineer, not a doctor, so the only advice I would presume to offer anyone is to seek the advice of the experts who attended the conference. These people know what LDN can do and they know the correct advice to give on it’s use.

Sorry, I have one more piece of advice to offer - don’t waste two years thinking about it.

]]> By: kim http://glasgowldn2009.com/2009/04/first-european-ldn-conference-report/#comment-1475 kim Fri, 08 May 2009 19:31:51 +0000 http://glasgowldn2009.com/?p=265#comment-1475 It was an incredible, soul-touching, inspiring Conference, with the Doctors and Pharmacists showing the clinical results and examples of Research, and the sufferers of illnesses such as M.S. and Cancer giving their own testimonials and proof in their Health, by being there! I thank all the Doctors, and Pharmacists, and all those involved in the LDN Research Trust. I have been taking LDN for 7 weeks to-day, and the continued improvements for me are just incredible!, ( i'm M.S. sufferer ). Thank-you all so much, I cannot put into words, just how much it is helping me, and my young son (of 11yrs. ) and my husband. We all have so much more hope in our lives...........xx Kim It was an incredible, soul-touching, inspiring Conference, with the Doctors and Pharmacists showing the clinical results and examples of Research, and the sufferers of illnesses such as M.S. and Cancer giving their own testimonials and proof in their Health, by being there!
I thank all the Doctors, and Pharmacists, and all those involved in the LDN Research Trust.
I have been taking LDN for 7 weeks to-day, and the continued improvements for me are just incredible!, ( i’m M.S. sufferer ).
Thank-you all so much, I cannot put into words, just how much it is helping me, and my young son (of 11yrs. ) and my husband.
We all have so much more hope in our lives………..xx
Kim

]]> By: Malcolm Smith http://glasgowldn2009.com/2009/04/first-european-ldn-conference-report/#comment-1204 Malcolm Smith Wed, 29 Apr 2009 22:00:29 +0000 http://glasgowldn2009.com/?p=265#comment-1204 Great conference - fascinating case studies clearly demonstrating the benefits of LDN in the treatment of a wide range of diseases, clearly supported by both clinical evidence and the results of research. Let's hope this leads to more widespread use of this amazing drug to alleviate the suffering of thousands of patients. Great conference - fascinating case studies clearly demonstrating the benefits of LDN in the treatment of a wide range of diseases, clearly supported by both clinical evidence and the results of research. Let’s hope this leads to more widespread use of this amazing drug to alleviate the suffering of thousands of patients.

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