Comments on: LDN Treatment, some background information http://glasgowldn2009.com/2009/04/ldn-treatment/ The first European Low Dose Naltrexone Conference, Glasgow University, 25th April, 2009 Fri, 10 Sep 2010 14:54:00 +0000 http://wordpress.org/?v=2.6.5 By: Clare http://glasgowldn2009.com/2009/04/ldn-treatment/#comment-5638 Clare Mon, 01 Mar 2010 21:17:26 +0000 http://glasgowldn2009.com/?p=356#comment-5638 I should also add that I was not diagnosed with anything, but was losing function of my arm and legs, or at times both hands, as well as having shortness of breath and transient facial paralysis; also had bladder and bowel issues, circulation problems, memory problems and muscle wasting. In other words i presented like an MS patient, but bc i knew i had mold exposure the doctors just dismissed me to rot and die- despite the fact that I was only 38 and have young children. I discovered my house had toxic mold, , and went on cholestyramine to bind the toxins. I I also did hyperbarics to heal the damage that had already been done as well as several supplements such as fucoidan, n acetyl cysteine. Yet, the LDN has changed my life. I got somewhat better, with the other treatments but after being on LDN 3 months, I now actually feel alive and can function- almost normally. I was bedridden and 105 pounds one year ago (I'm 5'8), now I weigh 127. I feel like Lazarus. I should also add that I was not diagnosed with anything, but was losing function of my arm and legs, or at times both hands, as well as having shortness of breath and transient facial paralysis; also had bladder and bowel issues, circulation problems, memory problems and muscle wasting. In other words i presented like an MS patient, but bc i knew i had mold exposure the doctors just dismissed me to rot and die- despite the fact that I was only 38 and have young children.
I discovered my house had toxic mold, , and went on cholestyramine to bind the toxins. I I also did hyperbarics to heal the damage that had already been done as well as several supplements such as fucoidan, n acetyl cysteine. Yet, the LDN has changed my life. I got somewhat better, with the other treatments but after being on LDN 3 months, I now actually feel alive and can function- almost normally. I was bedridden and 105 pounds one year ago (I’m 5′8), now I weigh 127. I feel like Lazarus.

]]> By: Kiya http://glasgowldn2009.com/2009/04/ldn-treatment/#comment-5510 Kiya Fri, 19 Feb 2010 20:34:44 +0000 http://glasgowldn2009.com/?p=356#comment-5510 I only learnt of LDN last week. You've got to find doctors who are willing to look outside the square so found one who gave me a script ... in Australia it costs $100 for 100caps. Will begin next week. I'm hoping that the pain of my fibromyalgia will reduce (disappear would be better!). I have fibromyalgia and Hashimoto's ... I've read lots about fibro (waiting for results of second of Stanford trials) but nothing about Hashimoto's. As thyroid problems seem often to be concommitant with fibromyalgia, I hope someone of the medicos at this year's conference will have some information on Hashimoto's and LDN, although (whinge, whinge, moan, moan) I know it's not so prominent in the minds of those who deal with autoimmune problems. While I'll get regular bloods done, I'd like to have some idea of what I might expect/hope for. I only learnt of LDN last week. You’ve got to find doctors who are willing to look outside the square so found one who gave me a script … in Australia it costs $100 for 100caps. Will begin next week. I’m hoping that the pain of my fibromyalgia will reduce (disappear would be better!).
I have fibromyalgia and Hashimoto’s … I’ve read lots about fibro (waiting for results of second of Stanford trials) but nothing about Hashimoto’s. As thyroid problems seem often to be concommitant with fibromyalgia, I hope someone of the medicos at this year’s conference will have some information on Hashimoto’s and LDN, although (whinge, whinge, moan, moan) I know it’s not so prominent in the minds of those who deal with autoimmune problems. While I’ll get regular bloods done, I’d like to have some idea of what I might expect/hope for.

]]> By: Pamela http://glasgowldn2009.com/2009/04/ldn-treatment/#comment-4600 Pamela Wed, 28 Oct 2009 15:20:30 +0000 http://glasgowldn2009.com/?p=356#comment-4600 I started taking LDN in June of 2009 for Fibromyalgia. I also have glaucoma. At first there was no increase in my intraocular pressure. After about two months it went up slightly. It is now at a place where I will have to discontinue the use of LDN. I have not taken any LDN for the past three days and my eye pressure has come down. I know that eleveated eye pressure is not supposed to be a side effect of the drug. I am so disappointed to have to stop as so many of my health problems have disappeared. Is there a permanent effect to the immune system after six months of treatment. Would I still benefit from taking it less often if i could manage my eye pressure by doing this. Pam I started taking LDN in June of 2009 for Fibromyalgia. I also have glaucoma. At first there was no increase in my intraocular pressure. After about two months it went up slightly. It is now at a place where I will have to discontinue the use of LDN. I have not taken any LDN for the past three days and my eye pressure has come down. I know that eleveated eye pressure is not supposed to be a side effect of the drug. I am so disappointed to have to stop as so many of my health problems have disappeared.
Is there a permanent effect to the immune system after six months of treatment. Would I still benefit from taking it less often if i could manage my eye pressure by doing this.
Pam

]]> By: Kate http://glasgowldn2009.com/2009/04/ldn-treatment/#comment-4583 Kate Thu, 22 Oct 2009 18:26:14 +0000 http://glasgowldn2009.com/?p=356#comment-4583 I live in Victoria British Columbia and having been trying to find a doctor to prescribe LDN for me since January 2009. No luck! My MS symptoms are worsening and I'm getting very discouraged. Kate I live in Victoria British Columbia and having been trying to find a doctor to prescribe LDN for me since January 2009. No luck! My MS symptoms are worsening and I’m getting very discouraged.
Kate

]]> By: Maggie Mildenhall http://glasgowldn2009.com/2009/04/ldn-treatment/#comment-4545 Maggie Mildenhall Sat, 17 Oct 2009 15:33:08 +0000 http://glasgowldn2009.com/?p=356#comment-4545 Hello, I am Maggie,Ihave had ms for 20 years. My 39year 0ld daughter died over a year ago , this on its own is very hard to explain how treacherous and painfull this is for us.Since this happened the effect on the m s has been very bad,we have a grandson who still lives with his father with a lot of input from me. The restrictions of the ms do not let me do as much as i want to.I WANT TO BE WELL FOR HIM. What can i do ,I am a brave person and will do anything to fight our need to get this drug out there for us. Any advice ?????????? Hello, I am Maggie,Ihave had ms for 20 years. My 39year 0ld daughter died over a year ago , this on its own is very hard to explain how treacherous and painfull this is for us.Since this happened the effect on the m s has been very bad,we have a grandson who still lives with his father with a lot of input from me. The restrictions of the ms do not let me do as much as i want to.I WANT TO BE WELL FOR HIM. What can i do ,I am a brave person and will do anything to fight our need to get this drug out there for us. Any advice ??????????

]]> By: Albert http://glasgowldn2009.com/2009/04/ldn-treatment/#comment-4208 Albert Mon, 14 Sep 2009 10:33:41 +0000 http://glasgowldn2009.com/?p=356#comment-4208 I have just received my first bottle of LDN after a 3 week struggle to get it! My doctor was open minded enough to listen to me and go to a website with me which explained what it was. He new nothing about the drug previously and so was cautious about supplying it at first but then after one week wrote out a prescription for me but then found out that he was not licensed to give it to me! He then found a private doctor in London who would write a prescription but he charged me an initial £100 to do this and repeat prescriptions are £50. Ever had the feeling your being ripped off! The drug costs just £15 for a months supply, available from Dixons in Glasgow but they can only supply it with a prescription! Why oh why is it not available on the NHS. I have worked all my life and paid my dues, now I am 64 and should receive this for nothing but my GP is powerless to prescribe it. I think the whole system stinks, it needs a kick up the backside! There are thousands of people like me who could benefit from this drug if only they could get it on the NHS or at least just pay for the true cost of the drug instead of paying a fortune for a private prescription. I just hope the greedy doctors who must take all of 1 minute to write out these prescriptions can sleep at night! Albert I have just received my first bottle of LDN after a 3 week struggle to get it!
My doctor was open minded enough to listen to me and go to a website with me which explained what it was. He new nothing about the drug previously and so was cautious about supplying it at first but then after one week wrote out a prescription for me but then found out that he was not licensed to give it to me!
He then found a private doctor in London who would write a prescription but he charged me an initial £100 to do this and repeat prescriptions are £50. Ever had the feeling your being ripped off! The drug costs just £15 for a months supply, available from Dixons in Glasgow but they can only supply it with a prescription! Why oh why is it not available on the NHS. I have worked all my life and paid my dues, now I am 64 and should receive this for nothing but my GP is powerless to prescribe it. I think the whole system stinks, it needs a kick up the backside! There are thousands of people like me who could benefit from this drug if only they could get it on the NHS or at least just pay for the true cost of the drug instead of paying a fortune for a private prescription. I just hope the greedy doctors who must take all of 1 minute to write out these prescriptions can sleep at night!
Albert

]]> By: Albert http://glasgowldn2009.com/2009/04/ldn-treatment/#comment-4207 Albert Mon, 14 Sep 2009 10:28:57 +0000 http://glasgowldn2009.com/?p=356#comment-4207 I have just received my first bottle of LDN after a 3 week struggle to get it! My doctor was open minded enough to listen to me and go to a website with me which explained what it was. He new nothing about the drug previously and so was cautious about supplying it at first but then after one week wrote out a prescription for me but then found out that he was not licensed to give it to me! He then found a private doctor in London who would write a prescription but he charged me an initial £100 to do this and repeat prescriptions are £50. Ever had the feeling your being ripped off! The drug costs just £15 for a months supply, available from Dixons in Glasgow but they can only supply it with a prescription! Why oh why is it not available on the NHS. I have worked all my life and paid my dues, now I am 64 and should receive this for nothing but my GP is powerless to prescribe it. I think the whole system stinks, it needs a kick up the backside! There are thousands of people like me who could benefit from this drug if only they could get it on the NHS or at least just pay for the true cost of the drug instead of paying a fortune for a private prescription. I just hope the greedy doctors who must take all of 1 minute to write out these prescriptions can sleep at night! Albert I have just received my first bottle of LDN after a 3 week struggle to get it!
My doctor was open minded enough to listen to me and go to a website with me which explained what it was. He new nothing about the drug previously and so was cautious about supplying it at first but then after one week wrote out a prescription for me but then found out that he was not licensed to give it to me!
He then found a private doctor in London who would write a prescription but he charged me an initial £100 to do this and repeat prescriptions are £50. Ever had the feeling your being ripped off! The drug costs just £15 for a months supply, available from Dixons in Glasgow but they can only supply it with a prescription! Why oh why is it not available on the NHS. I have worked all my life and paid my dues, now I am 64 and should receive this for nothing but my GP is powerless to prescribe it. I think the whole system stinks, it needs a kick up the backside! There are thousands of people like me who could benefit from this drug if only they could get it on the NHS or at least just pay for the true cost of the drug instead of paying a fortune for a private prescription. I just hope the greedy doctors who must take all of 1 minute to write out these prescriptions can sleep at night!
Albert

]]> By: Mary http://glasgowldn2009.com/2009/04/ldn-treatment/#comment-3874 Mary Thu, 20 Aug 2009 02:08:55 +0000 http://glasgowldn2009.com/?p=356#comment-3874 How long do you have to take LDN to get hair growth. My son has Alopecia Universal How long do you have to take LDN to get hair growth. My son has Alopecia Universal

]]> By: Margaret Anne http://glasgowldn2009.com/2009/04/ldn-treatment/#comment-3711 Margaret Anne Mon, 03 Aug 2009 13:27:31 +0000 http://glasgowldn2009.com/?p=356#comment-3711 Hi everyone, I am asking if you are a UK citizen and if you would sign a petition to have LDN go through trials, which would give research based evidence to highlight how it works! Please go to the link: http://petitions.number10.gov.uk/LowDNaltrexone/ and sign up....WE NEED PEOPLE TO SIGN SO THAT THE GOVERNMENT WILL GIVE THE GO AHEAD FOR THE TRIALS! You can see by the examples on this site it has made a difference to people's lifes... lets make it available to all who can benefit from it! Thanks for your support, Margaret Anne Hi everyone, I am asking if you are a UK citizen and if you would sign a petition to have LDN go through trials, which would give research based evidence to highlight how it works!
Please go to the link:

http://petitions.number10.gov.uk/LowDNaltrexone/

and sign up….WE NEED PEOPLE TO SIGN SO THAT THE GOVERNMENT WILL GIVE THE GO AHEAD FOR THE TRIALS!

You can see by the examples on this site it has made a difference to people’s lifes… lets make it available to all who can benefit from it!

Thanks for your support,

Margaret Anne

]]> By: Liam Magee http://glasgowldn2009.com/2009/04/ldn-treatment/#comment-2823 Liam Magee Sat, 27 Jun 2009 15:11:14 +0000 http://glasgowldn2009.com/?p=356#comment-2823 hi, My daughter was diagnosed to have ms about 4 yrs ago.Up until 3 wks ago she was very active in gyms and workouts on a regular basis.She had a serious seizure about 3 wks ago and has been having smaller seizures since then.Keepra has not helped and she now has been switched to tegretol.Do you think ldn would help with these seizures.Thank you. Liam hi,
My daughter was diagnosed to have ms about 4 yrs ago.Up until 3 wks ago she was very active
in gyms and workouts on a regular basis.She had a serious seizure about 3 wks ago and has been having smaller seizures since then.Keepra has not helped and she now has been switched to tegretol.Do you think ldn would help with these seizures.Thank you.
Liam

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